09/23/2010

So this has not been the best week of the year.

Daniel has fell twice this week!  OMG

 

The Doctor prescribed a med that is used to treat Parkinson's. We can only hope that it will help his balance and coordination some.  Thanks to Face book I have met so many others that have been impacted by HD.  Who knew that a Terrible disease could lead you to meet so many great people.  Let me say this cause I am just in a moooshy kind of mood. I hope everyone out there finds that love that is once in a life time.  Daniel is my once in a lifetime.  He is so kind, so funny, so loving!  I often think why could I not have found him 16 years ago, why could we not have grown up together and been together our whole life.  I have stopped asking that now and just Thank God every day for each day with him as it comes.  WEll more later I need rest.

0918/2010

Let me introduce the reason for my blog, my 34 year old husband has Huntington's Disease!  THis is going to be my outlet.  Any one who has a family member that they care for with a Neurodegenerative disease needs an outlet.  I do not feel that any one should have to listen to me complain or whine, so I smile to everyone and keep my mouth shut.  This is gonna alow me to write my feelings with no guilt, anyone who wants to hear about it has the option to read. I do complain about Hd so this is not for anyone who may not want to read sad or mad feelings. It will contain the truth at all times.  I will not try to cover the ugly parts or the happy parts this will be like the move the Good the Bad and the Ugly!